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Improving Engagement in Community Level Data Collection

We are excited to launch a collaborative report highlighting promising actions public health practitioners can take to shift surveillance systems to address community needs. The report will launch in May 2024. 

 


 

Improving Community Engagement in Design, Collection and Use of Community-Level Data to Address Structural Determinants of Health

To improve health outcomes for all, it is essential for the community to be at the forefront of public health data. Powered by five local communities, this program gathers communities’ perspectives on the use of survey data to improve health.

Data Equity Coalitions in Atlanta, Detroit, Durham, Pittsburgh and San Antonio are hosting focus groups and other feedback opportunities for their communities. By leveraging the communities’ feedback, this project aims to increase access to local measures of social determinants of health and to improve the reach of surveys, particularly among populations historically excluded from participating.

The five Data Equity Coalitions—local organizations partnering with communities to improve the availability and use of data that addresses local priorities for health and wellbeing—are tailoring approaches to their community needs and gathering local perspectives through:

Focus groups: Gain community perspectives and input on processes for collecting and sharing survey data
Survey enhancements: Review potential new survey questions using community interviews
Community outreach: Try new ways of administering surveys to increase participation
Data collection: Gather community input on existing and emerging data needs
Information synthesis: Analyze qualitative data from focus groups and interviews to coalesce findings across the data coalitions and communities

Project Goals:

1. INVEST
Invest in health measures and data that are relevant to communities and the outcomes communities care about

2. COLLECT
Collect data that is prioritized by communities and provide data in ways that support efforts to improve health locally

3. DEVELOP
Develop inclusive methods to interpret and share health data that increases trust in and use of data

4. FACILITATE
Facilitate connections between surveys and communities, and infuse community perspectives into data processes


Our Partners:

CDC's National Center for Chronic Disease Prevention and Health Promotion (NCCDPH)

Local Data Equity Coalitions:

Research Partner Organization:

The National Alliance against Disparities in Patient Health (NADPH) —Woodbridge, VA

Learn more about our partners.

 

This program is made possible through funding from the Robert Wood Johnson Foundation. The views expressed here do not necessarily reflect the views of the Foundation.


 

Surveys and Platforms

This project leverages processes and information from various public health surveys. Below are some of the surveys and platforms discussed:

PLACES
The Population Level Analysis and Community Estimates (PLACES) website provides user-friendly health measure estimates for all U.S. counties, census tracts and ZIP Codes.

BRFSS
The Behavioral Risk Factor Surveillance System (BRFSS) is a system of health-related telephone surveys that collect health data about U.S. residents. BRFSS collects data from over 400,000 adult interviews annually in 50 states, Washington, D.C., and three U.S. territories.

PRAMS
The Pregnancy Risk Assessment Monitoring System (PRAMS) collects data on attitudes and experiences before, during and shortly after pregnancy. PRAMS covers eight of 10 U.S. births and aims to improve birthing persons’ and infant health.

 

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a collage of many people of all ages and ethnicities
Improving Engagement in Community Level Data Collection
United States of America
The goal of the Improving Engagement in Community Level Data Collection program is to improve the nation's access to community-relevant and nationally significant data that measure health and equity.
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Monitoring Health Outcomes of Assisted Reproductive Technology

 

 
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Monitoring Health Outcomes of Assisted Reproductive Technology
United States of America

 

 
To provide research support for analysis of outcomes of assisted reproductive technologies.
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Hear Her Maternal Health Campaign

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Hear Her Maternal Health Campaign
United States of America
To expand the reach of Hear Her resources for healthcare professionals and American Indian and Alaska Native communities in the United States and conduct exploratory formative work to determine the feasibility of a new segment of the campaign to reach a global audience.
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Transforming Public Health Data Systems to Advance Health Equity

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community health
Transforming Public Health Data Systems to Advance Health Equity
United States of America
To provide integrated stewardship, governance and communication in order to transform and modernize public health data systems to better prevent, detect and respond to public health threats and promote equitable community wellbeing.
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PLACES Project

PLACES Project

The PLACES Project is a collaboration between the Centers for Disease Control and Prevention, the Robert Wood Johnson Foundation and the CDC Foundation. PLACES will allow counties, places, and local health departments regardless of population size and urban-rural status to better understand the burden and geographic distribution of health-related outcomes in their jurisdictions and assist them in planning public health interventions.

PLACES is an extension of the original 500 Cities Project that provided city and census tract estimates for chronic disease risk factors, health outcomes, and clinical preventive services use for the 500 largest US cities. The PLACES Project provides model-based population-level analysis and community estimates to all counties, places (incorporated and census designated places), census tracts, and ZIP Code Tabulation Areas (ZCTAs) across the United States. Learn more about the PLACES Project.

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America
PLACES Project
United States of America
To expand the 500 Cities Project to provide high-quality, small-area health data to other geographies in the United States.
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Lehigh Valley Public Health Informatics Fellowship

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Lehigh Valley Public Health Informatics Fellowship
United States of America
To embed a CDC Public Health Informatics Fellow within the Lehigh Valley healthcare system to solve complex public health informatics challenges by linking informatics, population health science and data on social determinants of health.
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National Hypertension Control Roundtable

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heart health
National Hypertension Control Roundtable
United States of America
To support the National Hypertension Control Roundtable in making meaningful progress toward their goal of 80 percent control of hypertension by 2025.
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Million Hearts

Larry Sperling

“We can’t rely solely on what we have done in the past. We need innovative strategies to engage the American population in ways that will drive meaningful action.”

Laurence Sperling, MD, Executive Director, Million Hearts, Division for Heart Disease and Stroke Prevention, CDC


Dr. Judy Monroe

“We are proud to have Amgen, Bayer, FH Foundation and the National Association of Chronic Disease Directors as partners who are equally committed to this vision and the potential to make a real difference.”

Judy Monroe, MD, President and CEO, CDC Foundation


Million Hearts Voices

More Voices from the Campaign

Million Hearts® Communication Campaign

The purpose of the Million Hearts® Communication Campaign is to help change the way people think about and embrace managing their heart health.

The solutions for preventing cardiovascular disease seem simple—including understanding your family history, managing high blood pressure and high cholesterol, staying physically active, maintaining a healthy diet and quitting smoking—but they are not always easy. Our vision is a future where all people understand their personal risk for heart disease and stroke, believe in their power to change it, and take steps to protect their heart health—and the health of their families.

This communication campaign is supported by the “Alliance for the Million Hearts Campaign,” a public-private coalition partnering with CDC Foundation to help accelerate the Million Hearts® Initiative toward its goal of preventing one million heart attacks and strokes by 2022. The Alliance is committed to:

  • Starting with people—co-creating a campaign with target audiences to meet people where they are.
     
  • Building bridges—engaging organizations with a track record of collaborating CDC as well as nontraditional partners in private and nonprofit sectors.
     
  • Nurturing innovation—assessing tactics that have worked in the past, but also exploring new methods to inspire action in the realities of today.

Alliance Partners

  • Amgen
  • Bayer
  • FH Foundation
  • National Association of Chronic Disease Directors (NACDD)

Campaign Updates

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Million Hearts
United States of America
To provide a health communication campaign related to heart disease education and prevention in the United States with the goal of informing Americans ages 35-64 on the risk factors of heart disease and stroke and inspiring action.
Short Teaser
Million Hearts
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