Sickle Cell Data Collection (SCDC) Program

To build the framework for collecting data about individuals in the United States with sickle cell disease in order to monitor their health outcomes, evaluate current systems of care, and inform the development of a comprehensive care model to meet the needs of these individuals throughout their life.
Funding Partners:
  • Pfizer Inc.
  • Bioverativ
  • Global Blood Therapeutics, Inc.
Previous Funding Partners:
  • Biogen MA Inc.
Program Partners:
  • CDC's National Center on Birth Defects and Developmental Disabilities
Program Location:
Georgia and California, USA