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Newborn Screening Test for Spinal Muscular Atrophy

1026
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Newborn screening
Newborn Screening Test for Spinal Muscular Atrophy
United States of America
To facilitate collaborative development of a newborn bloodspot screening test to detect the genetic lesions that cause spinal muscular atrophy. The test will be designed to use in public health newborn screening laboratories.

Preventing Mother-to-Child Transmission of HIV and HBV

679
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pregnant woman
Preventing Mother-to-Child Transmission of HIV
China
To help CDC increase understanding of the effectiveness of using maternal tenofovir containing combination drug during the second and third trimesters of pregnancy for the prevention of mother-to-child transmission of HIV and HBV in co-infected mothers.
Gilead Sciences, Inc.
CDC's National Center for Chronic Disease Prevention and Health Promotion

Building U.S. Capacity to Review and Prevent Maternal Deaths

According to CDC, about 700 women die each year in the United States as a result of pregnancy or delivery complications.

Building U.S. Capacity to Review and Prevent Maternal Deaths promotes the maternal mortality review process as the best way to understand why maternal mortality in the United States is increasing, and identify interventions to prevent maternal deaths. It supports essential review functions and enables data to be combined across jurisdictions for national learning, which was not previously possible. The initiative is a collaboration between the CDC Foundation, the Centers for Disease Control and Prevention (CDC) and the Association of Maternal and Child Health Programs (AMCHP). Funding for the collaboration was provided through an award agreement with Merck on behalf of its Merck for Mothers program.

Learn more about this program in the new 2018 Report From Nine Maternal Mortality Review Committees. The data used in this report is made possible by a partnership with nine states: Colorado, Delaware, Georgia, Hawaii, Illinois, North Carolina, Ohio, South Carolina, and Utah, who have been supporting the development of the Maternal Mortality Review Information Application (MMRIA). The 2017 Report from Maternal Mortality Review Committees: A View Into Their Critical Role is also available. Additional resources that support maternal mortality review committees are available at the Review to Action website.

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                    MMRIA

 

896
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pregnant woman
Building U.S. Capacity to Review and Prevent Maternal Deaths
United States of America
To increase the United States' capacity to use data for preventing maternal mortality.
Merck for Mothers
CDC's National Center on Birth Defects and Developmental Disabilities

Sickle Cell Data Collection (SCDC) Program

855
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sickle cell disease
Sickle Cell Data Collection (SCDC) Program
California and Georgia, USA
United States of America
To build the framework for collecting data about individuals in the United States with sickle cell disease in order to monitor their health outcomes, evaluate current systems of care, and inform the development of a comprehensive care model to meet the needs of these individuals throughout their life.
Biogen; Pfizer Inc.; Global Blood Therapeutics
CDC’s National Center on Birth Defects and Developmental Disabilities
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Healthy People Law and Health Policy Project

994
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chronic
Healthy People Law and Health Policy Project
United States of America
To collaborate with the Healthy People Initiative (a science-based, 10-year national objective for improving the health of Americans) to demonstrate the value of legal and policy interventions in improving Americans’ health.
Robert Wood Johnson Foundation
CDC's National Center for Chronic Disease Prevention and Health Promotion

Hormone Laboratory Collaborations

524
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Lab
Hormone Laboratory Collaborations
United States of America
To help CDC provide reference and quality control materials for laboratory collaboration, including collaborations for the Hormone Measurement Standardization program.
AB SCIEX; Abbott Laboratories; American University of Beirut; Ann & Robert H. Lurie Children's Hospital of Chicago; ARUP Laboratories; Beckman Coulter, Inc.; Bio-Rad Laboratories, Inc.; BMH Holdings (TMS BioScience Labs); Covance; DiaSorin Inc.; DIAsource Immunoassays; Douglass Hanly Moir Pathology; Endoceutics, Inc.; Euroimmun Medizinische Labordiagnostika AG; Fujirebio Diagnostics, Inc; Fujirebio Inc.; Health Canada; Immunodiagnostic Systems Inc.; Immunotech S.A.S. (Beckman Coulter, Inc); Laboratory Corporation of America Holdings; Los Angeles Biomedical Research Institute; Microgenics Corporation (Thermo Fisher Scientific, Inc.); New England Research Institutes, Inc.; Harvard University (Partners HealthCare System, Inc.); Pathology Associates Medical Laboratories; Quest Diagnostics; Reprosource Fertility Diagnostics; Roche Diagnostics Corporation; Sahlgrenska University Hospital; Siemens; Social & Scientific Systems, Inc.; Tosoh Bioscience, Inc.; Tricore Reference Laboratories; University College Cork; University of Helsinki; VU University Medical Center Amsterdam; ZRT Laboratory; multiple donors
CDC's Division of Laboratory Sciences
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