Sickle Cell Data Collection (SCDC) Program

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sickle cell disease
Sickle Cell Data Collection (SCDC) Program
California and Georgia, USA
United States of America
To build the framework for collecting data about individuals in the United States with sickle cell disease in order to monitor their health outcomes, evaluate current systems of care, and inform the development of a comprehensive care model to meet the needs of these individuals throughout their life.
Biogen; Pfizer Inc.; Global Blood Therapeutics
CDC’s National Center on Birth Defects and Developmental Disabilities
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