Improving Engagement in Community Level Data Collection

We are excited to launch a collaborative report highlighting promising actions public health practitioners can take to shift surveillance systems to address community needs. The report will launch in May 2024. 

Improving Community Engagement in Design, Collection and Use of Community-Level Data to Address Structural Determinants of Health

To improve health outcomes for all, it is essential for the community to be at the forefront of public health data. Powered by five local communities, this program gathers communities’ perspectives on the use of survey data to improve health.

Data Equity Coalitions in Atlanta, Detroit, Durham, Pittsburgh and San Antonio are hosting focus groups and other feedback opportunities for their communities. By leveraging the communities’ feedback, this project aims to increase access to local measures of social determinants of health and to improve the reach of surveys, particularly among populations historically excluded from participating.

The five Data Equity Coalitions—local organizations partnering with communities to improve the availability and use of data that addresses local priorities for health and wellbeing—are tailoring approaches to their community needs and gathering local perspectives through:

Focus groups: Gain community perspectives and input on processes for collecting and sharing survey data
Survey enhancements: Review potential new survey questions using community interviews
Community outreach: Try new ways of administering surveys to increase participation
Data collection: Gather community input on existing and emerging data needs
Information synthesis: Analyze qualitative data from focus groups and interviews to coalesce findings across the data coalitions and communities

Project Goals:

1. INVEST
Invest in health measures and data that are relevant to communities and the outcomes communities care about

2. COLLECT
Collect data that is prioritized by communities and provide data in ways that support efforts to improve health locally

3. DEVELOP
Develop inclusive methods to interpret and share health data that increases trust in and use of data

4. FACILITATE
Facilitate connections between surveys and communities, and infuse community perspectives into data processes

Our Partners:

CDC's National Center for Chronic Disease Prevention and Health Promotion (NCCDPH)

Local Data Equity Coalitions:

• The Black Equity Coalition and University of Pittsburgh’s Center for Social and Urban Research—Pittsburgh, PA
• Community Information Now (CI:Now)—San Antonio, TX
• Data Driven Detroit (D3)—Detroit, MI
• DataWorks NC—Durham, NC
• Neighborhood Nexus—Atlanta, GA

Research Partner Organization:

The National Alliance against Disparities in Patient Health (NADPH) —Woodbridge, VA

Learn more about our partners.

This program is made possible through funding from the Robert Wood Johnson Foundation. The views expressed here do not necessarily reflect the views of the Foundation.